Wednesday, December 31, 2008
A Turn for the Worst
Samuel is not well. He is very sick. His brain has not recovered. The only brain activity he is having is from seizures. It is really sad. He is just starring off into space and not responsive to anything. His little body is so limp and swollen. He is on a small amount of pain meds, but is still just out of it. At first he was breathing on his own, now he is hardly breathing on his own at all. Please just pray that the Lord will take him home tonight. I can't see him like this anymore. My heart is aching. I hurt so badly. We don't want to have to make the decision to take him off life support. So, please just pray that God will take him. This sucks. This is hard. I am struggling to function. My heart just hurts so much. I feel plagued with sadness. Give us peace O Lord. Give us peace. Please let our sweet baby boy be with you Lord, let him sit on your lap, let him laugh, let him run, let him be free of all these tubes, God we plead with you for your mercy on him.
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26 comments:
Kristy, I can not image the depth of pain that you must be feeling right now. Being a mother I can only understand a small part of what you are going through. I pray for you and Jeff to have strength through this time and I will pray for Samuel also. Please know that your family is here for you and we all love you so much. Even though distance separates us my heart is with you. I love you so much.
Your cousin, Sheri
"Don’t let your hearts be troubled. Trust in God, and trust also in me." John 14:1 NLT
Our prayer is for you to experience great peace in the midst of this great storm. God is surely carrying all of you in His Almighty arms.
Kristy, Words cannot express our feelings of sorrow for you and little Samuel. Be grateful for the love that you have given him in his short time and know that he knew your love. God knew what he was doing when he shared him with you and allowed you to be his parents. Even though we cannot be there to hug you, know that we send you hugs and that we are with you in spirit. Tina's computer is down but she sends you her love also. We will all be praying for God's will.May you have peace.
Love Aunt Karen
Dear Kristy and Jeff,
I am another 'unknown' supporter who has become attached to your family and this hefty assignment.
Like you, we were blessed with a beautiful little guy who came with special challenges. Jeffrey was diagnosed at 2 months with a progressive (fatal) neuromuscular disease. He earned his wings at 5-1/2 months, but not before we, too, were beefing up the prayers to God to take Jeffrey, especially when it became VERY clear that Jeffrey himself was ready to head to safer territory.
When I was hanging on - barely - to the last iota of sanity as Jeffrey fought the morphine that had been such a godsend, it dawned on me that maybe he was holding out for our sake. I gave him heartfelt permission to go on, that we would be okay, and he took two final, grateful breaths.
Many hugs and prayers from more folks than you'll ever know for your precious Samuel's comfort and for strength, courage, and wisdom for the rest of you. You already have the faith, which has been crucial from the beginning, so you know God is right there with you. He is surely pleased with how you have cared for His very special little one....
Helen
Kristy, I'm praying that God will give all of you exactly what you need in every moment, that you will be able to feel his comfort and peace.
Jen
Kristy, I have not left a comment before but have been praying for all of you. Mark has kept me updated on what is going on and we hurt for you. Please know that we are lifting you up and asking for God's mercy to be poured out in abundance.
Love to all,
Evette
Kristy and Jeff,
I am praying tonight for your peace and for the Lord to wrap you in His arms and give you rest. I cannot imagine what you all are going through. I'm so sorry. I love you both so much. I am here if you need anything at all.
"for He Himself is our peace" -eph 2:14
God loves Samuel so much.
I'm up late, and decided to check in on you all. I was so sad to read the heartache in your latest post. You both are amazing people, to go through what you have and continue to seek God's direction and strength. I'm praying too that Samuel will soon let go and experience life in the arms of Jesus. You all have been those arms in his short time in this world. I'm praying . . .
I have no idea what it is like to be in your shoes. It's unimaginable. My heart aches, though and I am praying for you all.
I prayed last night and will continue to pray today for peace from our Lord. Cling to his promises!
Dear Kristy, Jeff, Dawson, Samuel,
Anything that we could say would not come close to where you all are today. Just know that we pray for you everyday, for the Lord's wisdom for you, for the Lord to give each of you what you need, for the Spirit's comfort for you. Love, dave and mary
Jeff, Kristy and Samuel,
I'm so glad i got to be with you yesterday. me and dan are praying for you all, and we love you so much.
Talk to you soon...
Kyra & Dan
I am also continuing to pray for you all. You are amazing I continue to be in awe of your faith. I hope that you both realize that God chose the very best parents imaniginable to love Samuel and care for him until it is time for God to take over. I have no idea how hard this is for you as parents, but the timing or circumstances will not matter once Samuel gets to be with Jesus he will get to do all of the things Kristy has hoped he would be able to do and he will know no pain. Thank you for giving me the chance to know and love him along with you.
Nancy
we are thinking and praying for you guys constantly...God is good and in control even through the most terrible of times. We pray for strength and comfort that only our God can provide for you guys. We love you dearly and our hearts ache!
Joe and Christina
Just lifting you up today! Praying God's will be done but God's grace and peace to be on Samuel and your whole family! How deeply sad I am for your unbearable pain! Lean on the promises of God. He will not leave you or forsake you. - Chris
I'm so saddened to read this. I will pray that the Lord will take care of him.
Dear Ones, God is near. How He must ache for you this day. I'm sorry for your pain. I'm sorry for Samuel's pain. I am praying for all of you.
Don't lose hope - even when you're in the dark.
-Christine
Jeff, Kristy, Dawson, Just know that we are praying your prayer with you. Also, we pray for comfort for you guys.
Bro. Jeff & Ms. Kristy, We Love You...We won't stop praying. love, laura & paul
Kristy,
I cannot begin to imagine the pain you and Jeff must be feeling at this time. I will continue to pray for all of you and ask the Lord to take care of Samuel. Please know that no matter how far apart we are, or how long it's been since we've since each other, we are all here for you. I will pray for you, Jeff, Dawson, & Samuel. Take care and know that we are all praying for you everyday.
Your cousin, Tina
I heard this Chris Rice Song today and thought of you...
Sometimes the way is lonely
And steep and filled with pain
So if your sky is dark and pours the rain, then
Cry to Jesus
Cry to Jesus
Cry to Jesus and live!
O, and when the love spills over
And music fills the night
And when you can't contain your joy inside, then
Dance for Jesus
Dance for Jesus
Dance for Jesus and live!
And with your final heartbeat
Kiss the world goodbye
Then go in peace, and laugh on Glory's side, and
Fly to Jesus
Fly to Jesus
Fly to Jesus and live!
May our Creator give you the peace that passes all understanding. Your journey with Samuel has been an amazing testimony of faith.
Isaiah 40:28-31 Do you not know? Have you not heard? The LORD is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
Take care.
Melissa
You are all in my prayers.
Katie Pauley Dostal
Kristy
I do not know you physically but I have been following your blog from one of my friends. I am so sorry Samuel has taken a turn for "the worse". He is so lucky to have such wonderful parents, family and friends. He is in God's hands and I know he will make the right decision. That may be to help him recover, end his suffering or have his parents end it for him.
I can not imagine the trials and tribulations you have gon through. You will and have been in my thoughts and prayers. In God We Trust.
Brans
There is nothing one can say or do at a time like this, but I wanted to share some words from the Jars of Clay CD "Good Monsters." (Jars is Jeff and Kristy's favorite band, I think.)It's apparently an older song they written by a woman surnamed Miller, but it says a lot.
"When I go don't cry for me
In my Father's arms I'll be
The wounds this world left on my soul
Will all be healed and I'll be whole
"Sun and moon will be replaced
With the light of Jesus' face
I will not be ashamed
For my Savior knows my name."
The chorus is:
"It don't matter where you bury me
I'll be home and I'll be free. It don't matter where I lay.
All my tears be washed away."
There is more, but search for "All my tears" if you want more.
kristy and jeff love you guys
robin
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